March 21 is World Down Syndrome Day. It is a day we celebrate children and adults with Down syndrome, also known as Trisomy 21. If you were anything like I was a few years ago I knew nothing about Down syndrome. It wasn’t until my 20-week ultrasound for baby #2 that I wished I knew about Down syndrome.
During my 20-week ultrasound the techs found markers that looked like our baby had Down syndrome (DS). After some more scans and blood work it was confirmed that our little boy would have DS. I felt pressured to make several life altering decisions fast, so I leaned hard on prayer, family and mom-friends. I also took some time to mourn the loss of a “typical” baby. I got plugged into groups for mom of kiddos with DS and started to read all the books I could find to learn about DS. Even though I was worried and felt overwhelmed I knew in my heart that it would be okay.
We were blessed that Isaiah was born with very few issues, but he still had to stay in the NICU for three weeks. It was such a difficult time, and my emotions were all over the place. Again, we leaned on prayer, family, and friends to get us through.
Fast-forward four years and now those three weeks seem like a blip on the radar. Isaiah just turned 4 and is a healthy kid with a “take no crap” attitude and a smile that lights up the room. Looking back, I wish I could tell myself to trust the process and not worry so much about the future. Now I see the pure joy I get from having a son with special needs. Don’t get me wrong- we have experienced our fair share of struggles, tons of doctors’ appointments and therapies, and even a few procedures along the way. But I feel like I am a better person and a stronger mom because of these experiences. I focus more on the present, celebrate the small victories, and speak up when needed. I continue to learn more about DS and my son’s needs, even taking American Sign Language classes for better communication.
Having a child with special needs is challenging and can often feel lonely because not all moms can relate to some of the struggles special needs moms experience. Having people to lean on is very important. Having others show you kindness is essential. As we celebrate World Down Syndrome talk to your kids about DS and have them meet others with DS, like Isaiah. When you see anyone with different abilities, don’t shy away; instead make eye contact and greet them. This small bit of kindness can make a big difference to caregivers. On March 21st- and every day- take time to be kind to others, especially those with different abilities.